ALS (Lou Gehrigs Disease) is a progressive neurodegenerative disease that is 100% fatal. Ultimately it peels away all of your physical abilities to include eating and breathing. Every 90 minutes someone dies or is diagnosed with ALS. The average lifespan of someone diagnosed with ALS is 2-5 years. The estimated average yearly cost of caring for someone with ALS is over $200,000. The ALS association helps to provide services and equipment for those with ALS in addition to supporting research. This year the first drug in 25 years to help slow the progression of ALS was approved.
This Saturday, September 16th, at Lake Phalen Ken’s Crew will be gathering to raise money for the ALS Association. This year it will be especially poignant as Ken died this past July at the age of 54 after being diagnosed with ALS 3 and a half years ago. Please consider walking with Ken’s Crew and/or donating at the following link >> Ken’s Crew
Patti Brown is a clinical nurse specialist at Nystrom & Associates. She lost her husband Ken Brown from the horrible disease of ALS in July of 2017. She has two children and lives in Champlin, Minnesota.